References: Culture, Food, Family, and Stigma¶
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Understanding the impact of stigma on people with mental illness - Corrigan PW, Watson AC. World Psychiatry, 2002 - A short, free, classic paper that explains public stigma and self-stigma through stereotypes, prejudice, and discrimination. The framework used in Section 19.2.
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Impact of perceived stigma on inflammatory bowel disease patient outcomes - Taft TH, Keefer L, et al. Inflammatory Bowel Diseases, 2009 - Free full text of the survey of 211 adults with IBD analyzed in this chapter's claim box. Its limitations section is a good model of honest reporting.
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A systematic review of disease-related stigmatization in patients living with inflammatory bowel disease - Taft TH, Keefer L. Clinical and Experimental Gastroenterology, 2016 - Reviews research on perceived stigma, self-stigma, and discrimination in IBD, and points out what is still unknown.
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What is the impact of mental health-related stigma on help-seeking? A systematic review of quantitative and qualitative studies - Clement S, et al. Psychological Medicine, 2015 - A large review (144 studies, over 90,000 people) showing that stigma discourages seeking mental health care, especially for young people and ethnic minorities.
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Unmet Need for Mental Health Services Among High School Students Experiencing Persistent Feelings of Sadness or Hopelessness (2025 Youth Risk Behavior Survey) - Centers for Disease Control and Prevention, MMWR Supplements, October 2026 - The newest national data on teen sadness and hopelessness and on students who needed counseling but didn't get it, broken down by group.
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Worldwide incidence and prevalence of inflammatory bowel disease in the 21st century - Ng SC, et al. The Lancet, 2017 - The systematic review of 147 studies showing IBD rising in newly industrialized countries in Asia, Africa, and South America.
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Global evolution of inflammatory bowel disease across epidemiologic stages - Hracs L, et al. Nature, 2025 - Free full text of the analysis of 522 studies in 82 regions describing IBD's spread in stages, with maps and figures that are easy to explore.
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Epidemiological study of ulcerative proctocolitis in Indian migrants and the indigenous population of Leicestershire - Probert CS, et al. Gut, 1992 - The classic migration study behind the table in Section 19.5. Notice the dates (1972 to 1989) and that it covers one county.
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Mental health of South Asian youth in Peel Region, Toronto, Canada: a qualitative study - Islam F, et al. BMJ Open, 2017 - Free full text of interviews with 10 South Asian youth about pressures, coping, and barriers to care. A small study that shows how qualitative research describes experiences rather than rates.
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School Accommodation Plans and Inflammatory Bowel Disease (IBD) - Crohn's & Colitis Foundation, IBD Help Center fact sheet (2021) - A practical guide for families on 504 plans, common accommodations, and how to request them, plus resources for teens.
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Talking With Your Doctor - MedlinePlus, US National Library of Medicine (updated 2024) - Tips and linked guides for preparing questions, bringing support, using interpreters, and getting the most out of a medical visit.
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Health Literacy in Healthy People 2030 - Office of Disease Prevention and Health Promotion, US Department of Health and Human Services - Defines personal and organizational health literacy and explains why clear communication is a shared responsibility.